Micah Taylor Medical Fund
On May 13th 2019, in very dramatic fashion, Micah Isabelle Taylor was born. This unbelievably cute little girl (that I’ve been told looks like her Dad…), has already made such a huge impact on so many people in just her first 7 months. For anyone who is unfamiliar with her story, Micah was born with a significantly underdeveloped brain. We ended up rushing her to the hospital when she was 6 days old because of apparent seizure activity. Moments after walking into the ER, alarms were sounded as a hospital staff member witnessed Micah’s seizures first hand. 15-20 medical professionals rushed in from every direction and took our baby girl from my arms. Little did we know that this would be the beginning of a long journey.
No one could explain what was causing Micah seizures, but we ended up staying in Children’s Hospital Los Angeles for nearly a month doing all sorts of tests. She received CT scans, ultrasounds, blood tests, spinal taps, and MRIs. After weeks of knowing nothing, a group of doctors scheduled a meeting with us in a errie hospital room that was clearly attempting to provide some feeling of comfort and safety.
As we sat on a plastic couch, they showed us the MRI of Micah’s brain and explained the situation. “We don’t have a diagnosis for her right now, but we do know that she has a significantly malformed brain. We are not sure what life will look like for your daughter. There is a good chance she will never be able to walk, talk, see, hear, or eat…Do you have any questions?”
Paige started crying, and I sat in shock. After we somehow managed to ask a few questions, Paige looked at the eight random medical professionals who were staring at us with pity and said to them, “One thing I want to make sure you all know is that we believe Micah is the perfect gift and perfect child for us. We believe God has a plan and he made her for us and us for her.”
That’s when I started crying.
All this to say, our lives changed forever. Paige launched into action and is the clear favorite for the Mother of The Year Award. She researched everything and soaked up as much information as she could in the hospital. She instantly became THE Micah expert. She found every therapy that could increase Micah’s quality of life and dealt with the hospital red tape with intensity and a smile.
Paige also dealt with insurance for a minimum of 12 hours a week (with less smiles). You see, a lot of these therapies that have made the biggest difference in Micah’s development are not covered by insurance at all. The osteopath that is manipulating her skull to foster brain growth, the chiropractor working to minimize muscle tension, and the CBD oil that has seemingly stopped her seizures are all examples of things not covered by insurance at all. We are currently paying $3,000 per month out of pocket for therapies, meds, CBD oil, co-pays, etc.
It is difficult and humbling to ask others for help, but we are so incredibly grateful to any of you who feel led to support us financially during this time. Either way, we will never stop doing everything in our power to give our beautiful daughter the best life possible.
Thank you to all of you who have come alongside us and loved the three of us so well. I don’t know what we would do without you. Yes, there have been challenges, but incredible joy as well. When you are snuggling our little Micah close you know for sure that there is nothing better.